Tuesday, November 16, 2010




Today, one of my oldest and dearest friends, Marguerita, checked in on me by asking very concernedly,
"How Ya Doin?............."

As she is one of my oldest and dearest friends, I know that she was reaching out to me because I've been, say, um, kinda 'out of the picture' lately.

Haven't been out and about.

Haven't been Facebooking.

Haven't been blogging.

Haven't been........a whole much of anything.

One would think that Marguerita's simple question could be, in fact, simply answered.

But then again, we're talking about ME.


Honestly, she could quite possibly be the only person in the whole world who might even be able to understand, cuz, she's like the one person  in the whole world who has known me the longest.

She knew me 'before'.


you know.

when i was super smart, and super hot, and super healthy, and super twenty-eight, and super active, and super cute, and super tiny, and super sassy, and super successful, and super spinning the world on its side.


'before' I got sick.

There is so much that has happened.

I have become this, this, being, I don't know even know what or who it is.

Yeah, I could end up writing for hours, so if I do, I'm sorry.

I've been watching A LOT of Dubya on TV lately.

Because he's my super secret crush, and I think he's a super american hero, and I just wanna hug him and tell him i love him and we all love him and i'm so sorry for how WRONGLY he has been treated for the past 10 years.

And because what he says INTERESTS me, because you know, 9/11 was OUR Pearl Harbor, or OUR Vietnam.

9/11 was you, and me, and it is such a vital part of our history and our currency, and it is IMPOSSIBLE to explain it to my children, and they are geniuses.

So where was I?

Oh yeah, yummy Dubya.  Right.

So his new book is all about Decision Points.

I'm sure you've been listening or watching or whatever, so I won't go into it.

But in the past few weeks, I've seen that my own life has its own Decision Points.

No, I ain't no freaking George W. Bush, or Axis of Evildoer Killer or anything like that, don't worry, I'm not delusional.

And you know my life history, so I don't need to rehash that crap, and you know I'm a Christian, so just kinda put that in the Bible and close the book for a minute and just kinda absorb what I'm saying, because it could easily be taken out of context.

So here it goes.

I am a horrible wife and mother.

BUT -- I USED TO BE an AWESOME wife and mother ...and...and....and....

I don't like to clean up people's messes.

I don't like being responsible for two kids a dog a husband and myself for 100% of everything.

I don't like to mop, or dust, or sweep, or cook, or mend, or......I freaking hate it.


I absolutely HATE being a stay at home mom.

Now, breathe for a second.

I love my children like God loved Jesus, and you know I do.

Those two miracles were ripped from MY loins.

I know their cries, I know their laughs, I know every scar on their bodies, and i know where they came from, and I can tell you when and how it happened, and maybe even what they were wearing that day.

I love to brag about my kids.

I love to laugh at 'em and with 'em.

I love to help them with their homework.

I love when they ask if they can crawl into bed with me and watch "Billy the Extermintator" or "Fox and Friends" (true story - Jake has the hots for Gretchen Carlson).

I don't have to tell you how lovable my kids are, you already know.

But, to borrow from the title of a really bad book and movie, there have been a series of unfortunate events.

Let's just say that last year sucked.  Big donkey balls.

Death, disease, death, destruction, near death, horrific accidents, marital meltdowns, and watching my daughter DIE in the arms of her father, only to come back to life three minutes later.

So yeah, that one day in April sent me and billy both into a potentially unrecoverable tailspain.

I think I had PTSD, I really do.

Our marriage began its dissolution right then and there.

Our daughter lived (thank you, thank you, thank you GOD!), but a whole lot of 'us' died that die.

And no, of course not, it doesn't make any sense.

And nope, the resident psychologist who always has the answers for everyone else, can't get herself or anyone else around her 'fixed'.

But of course I thank God that my baby girl is currently sound asleep in her bedroom, tucked in with her 9 year old baby blanket, still sucking her thumb at night, an outrageous mop of curls on her head, and a gorgeous 'new' smile since her teeth have all come in.

Of course I do.

Where the heck am i going with this?

Remember when I got married to this guy that nobody would have ever thought would have been the one for me?

And then how suddenly, tomboy Rojo started wearing makeup, and coloring her hair, and deciding that maybe it was okay to look like a pretty girl, and hey maybe having kids would be kinda neat and then omg, I am twenty nine years old, I must have babies right freaking now to..............AND THEN I GOT SICK.


And that's my struggle.

Daily, hourly, weekly, constantly, whichever adverb you choose to use.

On February 28, 2008, I gave it up.

I stopped pretending that I could be Super Mom, Super Wife, Super Employee,Super Poster Child for the Chronically Ill Who Can Still Do It All!!!, Super Deacon, Super Friend, Super Daughter, Super Aunt, Super Human who always writes thank you notes and gets her Christmas cards out by December 1st every single year.

I stopped.

Because God told me to.

simple as that.

Because if I didn't stop, I was going to die.

And those two babies would never know any part of me.

And Up until that day in time, I had successfully hidden my Crohn's from the kids.

But on that day, God told me to stop, and i did.

I stopped trying to be anything BUT a wife and a mother.

And i did it to save my life.

And to save my family.

At the same time, I LOST the very person who I had BECOME.

It has been over 2 years.

I ache to be able to be 'her' again.

A normal person.

One who works HARD to provide for her family.

One who enjoys venturing out of the home.

One who simply likes to be around her friends and laugh at people named Beavis.

One who causes so many problems due to her 'combative' nature that there are never enough hours in the day to fix the damage which my mouth hath wrought.

I haven't gotten her back yet.

And the older I get, the more torture my body endures.

Every day, there is less I am able to do.

I can't get down on the floor and play with my babies.

I can't give my son the little brother he so desperately wants and most probably deserves.

My illness has advanced beyond science.

I'm just kinda biding my time, waiting for technology to catch up.

In the meantime, so very much has been lost.

I had even stopped praying for awhile.

We had simply run out of money.

I couldn't even afford to have a treatment, that's how bad it had gotten.

Thankfully, some funds were raised, and we're okay for a little while.

And hopefully, Billy will start at a 'real' job soon.

And maybe just maybe, GOD willing, I will receive acceptance of my 2+ year disability claim.

And perhaps, I may even regain my joie de vivre again.

But right now, how am I doing?

Well, I'm sad.

I'm sad that I'm 40 and that I'm 65 pounds overweight (thank YOU prednisone!).

And I'm sick.

And I hurt.

And I've started to give up.

And I don't really engage with people anymore.

You might say it's depression, I call it avoidance.

I don't have anything witty to say or any clever conversation to offer.

And I'm angry.

And resentful.

And confused.

And so very, very, very .......... tired.

I just realized something.

You're probably reading this and thinking, "Heather is so freaking incredibly selfish just because she is sick all the time, and OMG who does she think she is, cuz my friend DIED and his kids don't have him at ALL and she sure is selfish..."

You're right.

I should'nt have written any of this.  

I should have just lied and told you "GREAT" and glorified God even though he knew I was lying.

I love you Marguerita, and I don't make any sense to anyone anymore, even myself.

But I had to see a court appointed shrink for my SSI claim a couple of weeks ago, and well, it's kinda hard to explain to a stranger that "this Heather was like THIS", and "this Heather that you see today is simply not the same person" and then I started bawling telling her how I was this totally awesome career chick who was totally meant for greatness and how I used to go home to my totally awesome apartment and run for three totally awesome miles every day before I went to the mall to pick out a new pair of sexy shoes before me and my friend Jaynie would go pimping downtown, before...

........before I got sick.

My life used to have a dividing line of , 'and then I met billy'.

Now, my life span has been divided by these four words:

"before I got sick."

Anyway, this shrink said that most people don't understand that oftentimes we don't get to choose our life, that life chooses us.

When you read that statement over and over, it sounds pretty powerful.  And even more powerful if you add, "that GOD chooses our life for us."


The root of my problem.

The bane of my existence.

The whole "God has a plan" nonsense that spills out of my mouth more than anyone else's, in a desperately vain attempt to remain upbeat and positive because that's what everyone ELSE needs to hear.


GOD told me to stop working.

I don't know what he wants from me now.

My body has been taken from me, bruised and battered and beaten.

My marriage has been crumbling like old crusty bread.

My children may soon join their parents as some of 'those' people who are homeless.


Never saw this coming, mates,

Thought all my battles were behind me once I hit the smooth stride of my late twenties.

I had no idea that once I joined in to take up the cross, that my life was not beginning anew, but it was damn sure gonna change.

So. FINALLY, in answer to Marguerita's question, I guess I would have to say that...I'm doing okay, we've been through some rough stuff, but we're all still together, and the kids are doing awesome and I hope they love me a little bit, cuz I love them tons and tons and the house sure is lonely while they are gone at school and i love watching Jake play teeball and i love hearing Reilly sing old timey gospel music in a trio at church, and my the sight of my husband still makes my heart spin even though life has pushed us away from each other and we haven't a clue how to reconcile it back, but hey, we're all still here, still in the same house, still blessing our bread before supper, still sitting in the same pew on Sunday mornings, still gladfully tithing and constantly seeking Him.


That's what i should have to your question.


  1. I am not sure what to say. I will say while I think about it that I love you friend. I am praying for you every day still and will continue to do so.

  2. I don't really know what to say. That was beautifully written. I love you and you guys are in my prayers!

  3. I love you both, Shana and Lindy! Miss our daily shout-outs! :( I'll try really hard to get back to them....

  4. Hey You! I think we all feel sick and tired from time to time, and I think we'd all agree you have plenty of reasons to feel that way now. I think the most important thing is to be honest...w/God and everyone else how your TRULY feel so He can start healing and we can start (or keep) praying. I applaud you for laying your life out, broken and exposed b/c I know how hard it is to do, and I pray that God heal not only your body, but your mind, your spirit and your marriage as well. He is the God who heals and restores, and you are as precious to Him as Reilly and Jake are to you. Praying for you sister!

  5. H, I hope you know that T and I love you and worry about you constantly. Please remember we're just down the road from you now if you need us, or if you just need some baby snuggles while the kids are at school. We're here for you.

  6. Heather~ I know it sounds weird but thank you for posting this. I often find myself wondering how I will handle myself later in life if my Lupus takes a turn for the worest. Even though I know you're at a low point, it still gives me hope that you're still here and loving your family even if its in a differnt way than you're used to. Love you bunches and praying for all of you! ~Angela C.

  7. Too much to say for a comment box. I'll just say this -

    I also knew you before. And I have know you after. Believe it or not you're still pretty much the same person. Obviously older now, but that beats the alternative.

    There was a change, though. For a long time after you met Billy you were much happier than you had been before. Even with that damnable illness. So don't let all the crap that's piled up in the last three years bury that truth.

    As Kim said above, we're just down the road.

  8. Hi, I don't know you at all, unlike the rest of your commentors. But I am certainly sorry to hear you are having a hard time.

    I read two blogs written by people who have Crohn's. I am sure you have been all over and done your research, but just in case... you should really check out Making Love in the Kitchen. Meghan Telpner has Crohn's but she is currently symptom free due to her radical lifestyle changes. She became a nutritionist after her diagnosis, and it really changed her life. The other blog is called Dancing Through Life, by a girl named Ashley. She changed a lot about her lifestyle and eating, and she seems to be doing really well. Both of these women may be the exception and not the rule, but they really have eased their symptoms by using medicine as food and changing their lifestyles.

    I hope my comment is not presumptuous, but I love these two women's blogs. I don't have Crohn's, but my mom died from colo-rectal cancer, so I am really interested in diet and... poop! I will add your blog to my list, even though I just started reading it today when you are down in the dumps. I have a feeling that this is a temporary down and I really hope you feel better and more hopeful soon.

    Rachel in Okinawa